I got a phone call today from Dr. Dake's office. They are currently going through the list of patients to start testing them for CCSVI, but they have not started the clinical trial of angioplasty yet. I explained the I am currently 25.5 weeks pregnant, but expressed my great desire to remain on the list. She said that I am in a really good place on the list and it will be perfect timing to be part of the trial after the baby is born.
I am so excited and relieved to hear from them. Now I know that trials are still in their plans and that I am in their plans! I have been worried about whether or not I should sign up somewhere else just in case things do not work out with Dr. Dake's trials. Now I can relax and enjoy being pregnant and look forward to the baby and the trial.
I have so much hope in CCSVI, I cannot wait to be tested and for my veins to be corrected. Yippee!
Showing posts with label Dr. Dake. Show all posts
Showing posts with label Dr. Dake. Show all posts
6/1/10
1/22/10
Dr. Dake's Clinical Trials
Way back in November I sent all of my records and information to Dr. Dake, but I never heard back from him. I thought maybe they had decided to not have me as part of the trials or the procedures he was doing at that time.
Today I decided to email them again and his assistant quickly responded. She told me they didn't have my email address on file. Now they do and I have been on the list since November! Here is what the rest of the email said...
"Thank you for your inquiry regarding our work on blockages of the veins of the head and neck associated with multiple sclerosis. I wish I could talk with you personally to explain our ongoing work, but in order to provide a reply to all, I must respond by email. After careful review at Stanford, we have determined that the initiation of a clinical development program leading to a possible clinical trial will be the next step as we examine the possible risks and benefits of balloon angioplasty with or without venous stenting for patients with multiple sclerosis. This evaluation will start shortly but it is unlikely that, even given a highly positive outcome, we would be initiating any clinical trial before the second half of 2010 at the earliest. In light of these next steps, I am not currently performing the procedure at Stanford.
Please be assured that we will keep your contact information on file and provide appropriate updates of our work on this important issue.
I hope to have the opportunity to speak with you in the future.
Sincerely,
MICHAEL D. DAKE, M.D."
This gives me so much hope! If all goes as planned, I will hopefully be treated after September when the baby is born, late this year or early next year, maybe.
I know there are a lot of maybes and ifs in this, but I am still so excited. This might really happen.
I am a huge fan of breastfeeding, but I am willing to stop early if it means I can get my jugulars fixed! Woohoo! What an exciting year I have ahead of me! =)
Today I decided to email them again and his assistant quickly responded. She told me they didn't have my email address on file. Now they do and I have been on the list since November! Here is what the rest of the email said...
"Thank you for your inquiry regarding our work on blockages of the veins of the head and neck associated with multiple sclerosis. I wish I could talk with you personally to explain our ongoing work, but in order to provide a reply to all, I must respond by email. After careful review at Stanford, we have determined that the initiation of a clinical development program leading to a possible clinical trial will be the next step as we examine the possible risks and benefits of balloon angioplasty with or without venous stenting for patients with multiple sclerosis. This evaluation will start shortly but it is unlikely that, even given a highly positive outcome, we would be initiating any clinical trial before the second half of 2010 at the earliest. In light of these next steps, I am not currently performing the procedure at Stanford.
Please be assured that we will keep your contact information on file and provide appropriate updates of our work on this important issue.
I hope to have the opportunity to speak with you in the future.
Sincerely,
MICHAEL D. DAKE, M.D."
This gives me so much hope! If all goes as planned, I will hopefully be treated after September when the baby is born, late this year or early next year, maybe.
I know there are a lot of maybes and ifs in this, but I am still so excited. This might really happen.
I am a huge fan of breastfeeding, but I am willing to stop early if it means I can get my jugulars fixed! Woohoo! What an exciting year I have ahead of me! =)
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