I spent this morning calling different doctors in my area and it seems this is so new and specialized that they are referring me to Dr. Dake at Stanford University. I will be filling out the proper forms to be evaluated by him.
This website: www.ms-mri.com lists collaborators that are currently testing and treating CCSVI. It also has a cool video of what the veins might look like.
This link: http://www.thisisms.com/forum-40.html is a forum dedicated to those who have been treated for CCSVI or are planning on doing so.
This link: http://www.bnac.net/?page_id=496 is a study they are doing in Buffalo. I have emailed them and I am still waiting on hearing back. It sounds like this study is geared toward testing for it and possibly not treating it. We'll see.
I think that someday this will be a routine test and procedure they do when looking at MS. I want to be one who benefits from it now and not wait until it is "proven effective." I have confidence it will be.